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Primrose syndrome

Just diagnosed with Primrose syndrome?

You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Primrose syndrome, look for clinical trials, and connect with others living with it — all in one place.

Open the full Primrose syndrome hub →

Overview

Primrose syndrome is a rare condition. Also known as Primrose syndrome. Tomeko brings together the specialists, research, clinical trials, treatments and community for Primrose syndrome so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.

Identifiers: ORPHA:3042 · OMIM 259050 · ICD-10 Q87.8 · GARD 0004488

Find care for Primrose syndrome

Authoritative references for Primrose syndrome

Common questions

I was just diagnosed with Primrose syndrome — what should I do first?

Start by learning the basics from an authoritative source, find a specialist or center that sees Primrose syndrome, and connect with a patient organization. Tomeko brings these together on one hub.

Where can I find a specialist for Primrose syndrome?

Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Primrose syndrome, filtered to your area.

Are there clinical trials for Primrose syndrome?

Tomeko shows live, recruiting studies for Primrose syndrome from ClinicalTrials.gov on the hub.

Informational only — not medical advice. Always consult a qualified clinician. Provider and reference data from public sources (NIH GARD, Orphanet, OMIM, HPO, MONDO, ClinicalTrials.gov, CMS NPPES). © Tomeko · tomekohealth.com