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Primary progressive aphasia

Just diagnosed with Primary progressive aphasia?

You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Primary progressive aphasia, look for clinical trials, and connect with others living with it — all in one place.

Open the full Primary progressive aphasia hub →

Overview

Primary progressive aphasia is a rare condition. Also known as Mesulam syndrome, PPA. Tomeko brings together the specialists, research, clinical trials, treatments and community for Primary progressive aphasia so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.

Identifiers: ORPHA:95432 · GARD 0008541

Find care for Primary progressive aphasia

Authoritative references for Primary progressive aphasia

Common questions

I was just diagnosed with Primary progressive aphasia — what should I do first?

Start by learning the basics from an authoritative source, find a specialist or center that sees Primary progressive aphasia, and connect with a patient organization. Tomeko brings these together on one hub.

Where can I find a specialist for Primary progressive aphasia?

Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Primary progressive aphasia, filtered to your area.

Are there clinical trials for Primary progressive aphasia?

Tomeko shows live, recruiting studies for Primary progressive aphasia from ClinicalTrials.gov on the hub.

Informational only — not medical advice. Always consult a qualified clinician. Provider and reference data from public sources (NIH GARD, Orphanet, OMIM, HPO, MONDO, ClinicalTrials.gov, CMS NPPES). © Tomeko · tomekohealth.com