You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Primary intestinal lymphangiectasia, look for clinical trials, and connect with others living with it — all in one place.
Open the full Primary intestinal lymphangiectasia hub →Primary intestinal lymphangiectasia is a rare condition. Also known as Waldmann disease. Tomeko brings together the specialists, research, clinical trials, treatments and community for Primary intestinal lymphangiectasia so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:90362 · OMIM 152800 · ICD-10 I89.0 · GARD 0007873
Start by learning the basics from an authoritative source, find a specialist or center that sees Primary intestinal lymphangiectasia, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Primary intestinal lymphangiectasia, filtered to your area.
Tomeko shows live, recruiting studies for Primary intestinal lymphangiectasia from ClinicalTrials.gov on the hub.