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Primary ciliary dyskinesia

Just diagnosed with Primary ciliary dyskinesia?

You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Primary ciliary dyskinesia, look for clinical trials, and connect with others living with it — all in one place.

Open the full Primary ciliary dyskinesia hub →

Overview

Primary ciliary dyskinesia is a rare condition. Also known as PCD. Tomeko brings together the specialists, research, clinical trials, treatments and community for Primary ciliary dyskinesia so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.

Identifiers: ORPHA:244 · OMIM 215518, 215520, 242670 · ICD-10 Q34.8 · GARD 0004484

Find care for Primary ciliary dyskinesia

Authoritative references for Primary ciliary dyskinesia

Common questions

I was just diagnosed with Primary ciliary dyskinesia — what should I do first?

Start by learning the basics from an authoritative source, find a specialist or center that sees Primary ciliary dyskinesia, and connect with a patient organization. Tomeko brings these together on one hub.

Where can I find a specialist for Primary ciliary dyskinesia?

Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Primary ciliary dyskinesia, filtered to your area.

Are there clinical trials for Primary ciliary dyskinesia?

Tomeko shows live, recruiting studies for Primary ciliary dyskinesia from ClinicalTrials.gov on the hub.

Informational only — not medical advice. Always consult a qualified clinician. Provider and reference data from public sources (NIH GARD, Orphanet, OMIM, HPO, MONDO, ClinicalTrials.gov, CMS NPPES). © Tomeko · tomekohealth.com