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Primary CD59 deficiency

Just diagnosed with Primary CD59 deficiency?

You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Primary CD59 deficiency, look for clinical trials, and connect with others living with it — all in one place.

Open the full Primary CD59 deficiency hub →

Overview

Primary CD59 deficiency is a rare condition. Tomeko brings together the specialists, research, clinical trials, treatments and community for Primary CD59 deficiency so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.

Identifiers: ORPHA:169464 · OMIM 612300 · ICD-10 D84.1 · GARD 0017054

Find care for Primary CD59 deficiency

Authoritative references for Primary CD59 deficiency

Common questions

I was just diagnosed with Primary CD59 deficiency — what should I do first?

Start by learning the basics from an authoritative source, find a specialist or center that sees Primary CD59 deficiency, and connect with a patient organization. Tomeko brings these together on one hub.

Where can I find a specialist for Primary CD59 deficiency?

Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Primary CD59 deficiency, filtered to your area.

Are there clinical trials for Primary CD59 deficiency?

Tomeko shows live, recruiting studies for Primary CD59 deficiency from ClinicalTrials.gov on the hub.

Informational only — not medical advice. Always consult a qualified clinician. Provider and reference data from public sources (NIH GARD, Orphanet, OMIM, HPO, MONDO, ClinicalTrials.gov, CMS NPPES). © Tomeko · tomekohealth.com