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Primary basilar invagination

Just diagnosed with Primary basilar invagination?

You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Primary basilar invagination, look for clinical trials, and connect with others living with it — all in one place.

Open the full Primary basilar invagination hub →

Overview

Primary basilar invagination is a rare condition. Also known as Bull-Nixon syndrome. Tomeko brings together the specialists, research, clinical trials, treatments and community for Primary basilar invagination so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.

Identifiers: ORPHA:2285 · OMIM 109500 · ICD-10 Q75.8 · GARD 0001037

Find care for Primary basilar invagination

Authoritative references for Primary basilar invagination

Common questions

I was just diagnosed with Primary basilar invagination — what should I do first?

Start by learning the basics from an authoritative source, find a specialist or center that sees Primary basilar invagination, and connect with a patient organization. Tomeko brings these together on one hub.

Where can I find a specialist for Primary basilar invagination?

Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Primary basilar invagination, filtered to your area.

Are there clinical trials for Primary basilar invagination?

Tomeko shows live, recruiting studies for Primary basilar invagination from ClinicalTrials.gov on the hub.

Informational only — not medical advice. Always consult a qualified clinician. Provider and reference data from public sources (NIH GARD, Orphanet, OMIM, HPO, MONDO, ClinicalTrials.gov, CMS NPPES). © Tomeko · tomekohealth.com