You are not alone. Here is where to start: learn the basics, find a specialist or center that sees POEMS syndrome, look for clinical trials, and connect with others living with it — all in one place.
Open the full POEMS syndrome hub →POEMS syndrome is a rare condition. Also known as Crow-Fukase syndrome, Osteosclerotic myeloma, PEP syndrome, Polyneuropathy-endocrinopathy-plasma cell dyscrasia syndrome, Takatsuki syndrome. Tomeko brings together the specialists, research, clinical trials, treatments and community for POEMS syndrome so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:2905 · ICD-10 D47.2 · GARD 0007411
Start by learning the basics from an authoritative source, find a specialist or center that sees POEMS syndrome, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat POEMS syndrome, filtered to your area.
Tomeko shows live, recruiting studies for POEMS syndrome from ClinicalTrials.gov on the hub.