You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Pigmented paravenous retinochoroidal atrophy, look for clinical trials, and connect with others living with it — all in one place.
Open the full Pigmented paravenous retinochoroidal atrophy hub →Pigmented paravenous retinochoroidal atrophy is a rare condition. Also known as PPRCA. Tomeko brings together the specialists, research, clinical trials, treatments and community for Pigmented paravenous retinochoroidal atrophy so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:251295 · OMIM 172870 · ICD-10 H35.5 · GARD 0017208
Start by learning the basics from an authoritative source, find a specialist or center that sees Pigmented paravenous retinochoroidal atrophy, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Pigmented paravenous retinochoroidal atrophy, filtered to your area.
Tomeko shows live, recruiting studies for Pigmented paravenous retinochoroidal atrophy from ClinicalTrials.gov on the hub.