You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Pigmentary pallidal degeneration, look for clinical trials, and connect with others living with it — all in one place.
Open the full Pigmentary pallidal degeneration hub →Pigmentary pallidal degeneration is a rare condition. Also known as Hallervorden-Spatz syndrome, NBIA1, Neurodegeneration with brain iron accumulation type 1, PKAN. Tomeko brings together the specialists, research, clinical trials, treatments and community for Pigmentary pallidal degeneration so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:157850 · OMIM 234200 · ICD-10 G23.0 · GARD 0006564
Start by learning the basics from an authoritative source, find a specialist or center that sees Pigmentary pallidal degeneration, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Pigmentary pallidal degeneration, filtered to your area.
Tomeko shows live, recruiting studies for Pigmentary pallidal degeneration from ClinicalTrials.gov on the hub.