You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Photogenic epilepsy, look for clinical trials, and connect with others living with it — all in one place.
Open the full Photogenic epilepsy hub →Photogenic epilepsy is a rare condition. Also known as POLE. Tomeko brings together the specialists, research, clinical trials, treatments and community for Photogenic epilepsy so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:166409 · OMIM 132100, 609572, 609573 · ICD-10 G40.5 · GARD 0005648
Start by learning the basics from an authoritative source, find a specialist or center that sees Photogenic epilepsy, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Photogenic epilepsy, filtered to your area.
Tomeko shows live, recruiting studies for Photogenic epilepsy from ClinicalTrials.gov on the hub.