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Phakomatosis spilorosea

Just diagnosed with Phakomatosis spilorosea?

You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Phakomatosis spilorosea, look for clinical trials, and connect with others living with it — all in one place.

Open the full Phakomatosis spilorosea hub →

Overview

Phakomatosis spilorosea is a rare condition. Also known as Phakomatosis pigmentovascularis type 3. Tomeko brings together the specialists, research, clinical trials, treatments and community for Phakomatosis spilorosea so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.

Identifiers: ORPHA:79485 · ICD-10 Q85.8 · GARD 0019025

Find care for Phakomatosis spilorosea

Authoritative references for Phakomatosis spilorosea

Common questions

I was just diagnosed with Phakomatosis spilorosea — what should I do first?

Start by learning the basics from an authoritative source, find a specialist or center that sees Phakomatosis spilorosea, and connect with a patient organization. Tomeko brings these together on one hub.

Where can I find a specialist for Phakomatosis spilorosea?

Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Phakomatosis spilorosea, filtered to your area.

Are there clinical trials for Phakomatosis spilorosea?

Tomeko shows live, recruiting studies for Phakomatosis spilorosea from ClinicalTrials.gov on the hub.

Informational only — not medical advice. Always consult a qualified clinician. Provider and reference data from public sources (NIH GARD, Orphanet, OMIM, HPO, MONDO, ClinicalTrials.gov, CMS NPPES). © Tomeko · tomekohealth.com