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PFAPA syndrome

Just diagnosed with PFAPA syndrome?

You are not alone. Here is where to start: learn the basics, find a specialist or center that sees PFAPA syndrome, look for clinical trials, and connect with others living with it — all in one place.

Open the full PFAPA syndrome hub →

Overview

PFAPA syndrome is a rare condition. Also known as Marshall syndrome with periodic fever, Periodic fever-aphtous stomatitis-pharyngitis-adenopathy syndrome. Tomeko brings together the specialists, research, clinical trials, treatments and community for PFAPA syndrome so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.

Identifiers: ORPHA:42642 · ICD-10 E85.0 · GARD 0005657

Find care for PFAPA syndrome

Authoritative references for PFAPA syndrome

Common questions

I was just diagnosed with PFAPA syndrome — what should I do first?

Start by learning the basics from an authoritative source, find a specialist or center that sees PFAPA syndrome, and connect with a patient organization. Tomeko brings these together on one hub.

Where can I find a specialist for PFAPA syndrome?

Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat PFAPA syndrome, filtered to your area.

Are there clinical trials for PFAPA syndrome?

Tomeko shows live, recruiting studies for PFAPA syndrome from ClinicalTrials.gov on the hub.

Informational only — not medical advice. Always consult a qualified clinician. Provider and reference data from public sources (NIH GARD, Orphanet, OMIM, HPO, MONDO, ClinicalTrials.gov, CMS NPPES). © Tomeko · tomekohealth.com