You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Persistent hyperplastic primary vitreous, look for clinical trials, and connect with others living with it — all in one place.
Open the full Persistent hyperplastic primary vitreous hub →Persistent hyperplastic primary vitreous is a rare condition. Also known as Congenital retinal detachment, NCRNA disease, Non-syndromic congenital retinal non-attachment, PFVS, PHPV, Persistent fetal vasculature syndrome. Tomeko brings together the specialists, research, clinical trials, treatments and community for Persistent hyperplastic primary vitreous so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:91495 · OMIM 221900, 611308 · ICD-10 Q14.0 · GARD 0016803
Start by learning the basics from an authoritative source, find a specialist or center that sees Persistent hyperplastic primary vitreous, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Persistent hyperplastic primary vitreous, filtered to your area.
Tomeko shows live, recruiting studies for Persistent hyperplastic primary vitreous from ClinicalTrials.gov on the hub.