You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Perry syndrome, look for clinical trials, and connect with others living with it — all in one place.
Open the full Perry syndrome hub →Perry syndrome is a rare condition. Also known as Parkinsonism with alveolar hypoventilation and mental depression. Tomeko brings together the specialists, research, clinical trials, treatments and community for Perry syndrome so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:178509 · OMIM 168605 · ICD-10 G23.8 · GARD 0010453
Start by learning the basics from an authoritative source, find a specialist or center that sees Perry syndrome, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Perry syndrome, filtered to your area.
Tomeko shows live, recruiting studies for Perry syndrome from ClinicalTrials.gov on the hub.