You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Pelviscapular dysplasia, look for clinical trials, and connect with others living with it — all in one place.
Open the full Pelviscapular dysplasia hub →Pelviscapular dysplasia is a rare condition. Also known as Cousin syndrome, Familial pelvis-scapular dysplasia. Tomeko brings together the specialists, research, clinical trials, treatments and community for Pelviscapular dysplasia so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:93333 · OMIM 260660 · ICD-10 Q87.5 · GARD 0001555
Start by learning the basics from an authoritative source, find a specialist or center that sees Pelviscapular dysplasia, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Pelviscapular dysplasia, filtered to your area.
Tomeko shows live, recruiting studies for Pelviscapular dysplasia from ClinicalTrials.gov on the hub.