You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Pelvis syndrome, look for clinical trials, and connect with others living with it — all in one place.
Open the full Pelvis syndrome hub →Pelvis syndrome is a rare condition. Also known as Lower body hemangioma-urogenital anomalies-myelopathy-bony deformities-anorectal and arterial malformations-renal anomalies syndrome, PELVIS syndrome, Perineal hemangioma-external genitalia malformations-lipomyelomeningocele-vesicorenal abnormalities-imperforate anus-skin tag syndrome, SACRAL syndrome. Tomeko brings together the specialists, research, clinical trials, treatments and community for Pelvis syndrome so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:83628 · ICD-10 Q87.8 · GARD 0019045
Start by learning the basics from an authoritative source, find a specialist or center that sees Pelvis syndrome, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Pelvis syndrome, filtered to your area.
Tomeko shows live, recruiting studies for Pelvis syndrome from ClinicalTrials.gov on the hub.