You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Pelvis-shoulder dysplasia, look for clinical trials, and connect with others living with it — all in one place.
Open the full Pelvis-shoulder dysplasia hub →Pelvis-shoulder dysplasia is a rare condition. Also known as Kosenow syndrome, Scapuloiliac dysostosis. Tomeko brings together the specialists, research, clinical trials, treatments and community for Pelvis-shoulder dysplasia so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:2839 · OMIM 169550 · ICD-10 Q87.5 · GARD 0016611
Start by learning the basics from an authoritative source, find a specialist or center that sees Pelvis-shoulder dysplasia, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Pelvis-shoulder dysplasia, filtered to your area.
Tomeko shows live, recruiting studies for Pelvis-shoulder dysplasia from ClinicalTrials.gov on the hub.