You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Paroxysmal nocturnal hemoglobinuria, look for clinical trials, and connect with others living with it — all in one place.
Open the full Paroxysmal nocturnal hemoglobinuria hub →Paroxysmal nocturnal hemoglobinuria is a rare condition. Also known as Marchiafava-Micheli disease, PNH. Tomeko brings together the specialists, research, clinical trials, treatments and community for Paroxysmal nocturnal hemoglobinuria so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:447 · OMIM 300818, 615399 · ICD-10 D59.5 · GARD 0007337
Start by learning the basics from an authoritative source, find a specialist or center that sees Paroxysmal nocturnal hemoglobinuria, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Paroxysmal nocturnal hemoglobinuria, filtered to your area.
Tomeko shows live, recruiting studies for Paroxysmal nocturnal hemoglobinuria from ClinicalTrials.gov on the hub.