You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Paramedian nasal cleft, look for clinical trials, and connect with others living with it — all in one place.
Open the full Paramedian nasal cleft hub →Paramedian nasal cleft is a rare condition. Also known as Alar cleft, Alar rim cleft, Cleft nose, Isolated cleft of the ala nasi, Isolated coloboma of the nose, Tessier number 1 cleft. Tomeko brings together the specialists, research, clinical trials, treatments and community for Paramedian nasal cleft so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:141242 · OMIM 614687 · ICD-10 Q18.8 · GARD 0016973
Start by learning the basics from an authoritative source, find a specialist or center that sees Paramedian nasal cleft, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Paramedian nasal cleft, filtered to your area.
Tomeko shows live, recruiting studies for Paramedian nasal cleft from ClinicalTrials.gov on the hub.