You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Pai syndrome, look for clinical trials, and connect with others living with it — all in one place.
Open the full Pai syndrome hub →Pai syndrome is a rare condition. Also known as Median cleft of the upper lip-corpus callosum lipoma-midline facial cutaneous polyps syndrome. Tomeko brings together the specialists, research, clinical trials, treatments and community for Pai syndrome so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:1993 · OMIM 155145 · ICD-10 Q87.8 · GARD 0003439
Start by learning the basics from an authoritative source, find a specialist or center that sees Pai syndrome, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Pai syndrome, filtered to your area.
Tomeko shows live, recruiting studies for Pai syndrome from ClinicalTrials.gov on the hub.