You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Osteogenesis imperfecta, look for clinical trials, and connect with others living with it — all in one place.
Open the full Osteogenesis imperfecta hub →Osteogenesis imperfecta is a rare condition. Also known as OI, Brittle bone disease, Glass bone disease, Lobstein disease. Tomeko brings together the specialists, research, clinical trials, treatments and community for Osteogenesis imperfecta so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:666 · OMIM 166200, 166210, 166220 · ICD-10 Q78.0 · GARD 0001017
Start by learning the basics from an authoritative source, find a specialist or center that sees Osteogenesis imperfecta, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Osteogenesis imperfecta, filtered to your area.
Tomeko shows live, recruiting studies for Osteogenesis imperfecta from ClinicalTrials.gov on the hub.