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Opsoclonus-myoclonus syndrome

Just diagnosed with Opsoclonus-myoclonus syndrome?

You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Opsoclonus-myoclonus syndrome, look for clinical trials, and connect with others living with it — all in one place.

Open the full Opsoclonus-myoclonus syndrome hub →

Overview

Opsoclonus-myoclonus syndrome is a rare condition. Also known as Ataxo-opso-myoclonus syndrome, Dancing eye syndrome, Dancing eye-dancing feet syndrome, Kinsbourne syndrome, OMA syndrome, OMS, Opsoclonus-myoclonus-ataxia syndrome, POMA syndrome. Tomeko brings together the specialists, research, clinical trials, treatments and community for Opsoclonus-myoclonus syndrome so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.

Identifiers: ORPHA:1183 · ICD-10 G25.3 · GARD 0010009

Find care for Opsoclonus-myoclonus syndrome

Authoritative references for Opsoclonus-myoclonus syndrome

Common questions

I was just diagnosed with Opsoclonus-myoclonus syndrome — what should I do first?

Start by learning the basics from an authoritative source, find a specialist or center that sees Opsoclonus-myoclonus syndrome, and connect with a patient organization. Tomeko brings these together on one hub.

Where can I find a specialist for Opsoclonus-myoclonus syndrome?

Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Opsoclonus-myoclonus syndrome, filtered to your area.

Are there clinical trials for Opsoclonus-myoclonus syndrome?

Tomeko shows live, recruiting studies for Opsoclonus-myoclonus syndrome from ClinicalTrials.gov on the hub.

Informational only — not medical advice. Always consult a qualified clinician. Provider and reference data from public sources (NIH GARD, Orphanet, OMIM, HPO, MONDO, ClinicalTrials.gov, CMS NPPES). © Tomeko · tomekohealth.com