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Oguchi disease

Just diagnosed with Oguchi disease?

You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Oguchi disease, look for clinical trials, and connect with others living with it — all in one place.

Open the full Oguchi disease hub →

Overview

Oguchi disease is a rare condition. Also known as Congenital stationary night blindness, Oguchi type, Oguchi syndrome. Tomeko brings together the specialists, research, clinical trials, treatments and community for Oguchi disease so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.

Identifiers: ORPHA:75382 · OMIM 258100, 613411 · ICD-10 H53.6 · GARD 0010118

Find care for Oguchi disease

Authoritative references for Oguchi disease

Common questions

I was just diagnosed with Oguchi disease — what should I do first?

Start by learning the basics from an authoritative source, find a specialist or center that sees Oguchi disease, and connect with a patient organization. Tomeko brings these together on one hub.

Where can I find a specialist for Oguchi disease?

Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Oguchi disease, filtered to your area.

Are there clinical trials for Oguchi disease?

Tomeko shows live, recruiting studies for Oguchi disease from ClinicalTrials.gov on the hub.

Informational only — not medical advice. Always consult a qualified clinician. Provider and reference data from public sources (NIH GARD, Orphanet, OMIM, HPO, MONDO, ClinicalTrials.gov, CMS NPPES). © Tomeko · tomekohealth.com