You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Oculopharyngodistal myopathy, look for clinical trials, and connect with others living with it — all in one place.
Open the full Oculopharyngodistal myopathy hub →Oculopharyngodistal myopathy is a rare condition. Also known as OPDM, Oculopharyngeal distal myopathy. Tomeko brings together the specialists, research, clinical trials, treatments and community for Oculopharyngodistal myopathy so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:98897 · OMIM 164310, 618637, 618940 · ICD-10 G71.0 · GARD 0012592
Start by learning the basics from an authoritative source, find a specialist or center that sees Oculopharyngodistal myopathy, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Oculopharyngodistal myopathy, filtered to your area.
Tomeko shows live, recruiting studies for Oculopharyngodistal myopathy from ClinicalTrials.gov on the hub.