You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Oculootoradial syndrome, look for clinical trials, and connect with others living with it — all in one place.
Open the full Oculootoradial syndrome hub →Oculootoradial syndrome is a rare condition. Also known as Oculo-oto-radial syndrome, Radial ray defects, hearing impairment, external ophthalmoplegia, and thrombocytopenia. Tomeko brings together the specialists, research, clinical trials, treatments and community for Oculootoradial syndrome so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:2307 · OMIM 147750 · ICD-10 Q71.8 · GARD 0000269
Start by learning the basics from an authoritative source, find a specialist or center that sees Oculootoradial syndrome, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Oculootoradial syndrome, filtered to your area.
Tomeko shows live, recruiting studies for Oculootoradial syndrome from ClinicalTrials.gov on the hub.