You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Oculocutaneous albinism type 1B, look for clinical trials, and connect with others living with it — all in one place.
Open the full Oculocutaneous albinism type 1B hub →Oculocutaneous albinism type 1B is a rare condition. Also known as OCA1B, Oculocutaneous albinism, Amish type, Platinum oculocutaneous albinism, Yellow oculocutaneous albinism. Tomeko brings together the specialists, research, clinical trials, treatments and community for Oculocutaneous albinism type 1B so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:79434 · OMIM 606952 · ICD-10 E70.3 · GARD 0000594
Start by learning the basics from an authoritative source, find a specialist or center that sees Oculocutaneous albinism type 1B, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Oculocutaneous albinism type 1B, filtered to your area.
Tomeko shows live, recruiting studies for Oculocutaneous albinism type 1B from ClinicalTrials.gov on the hub.