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Oculoauriculofrontonasal syndrome

Just diagnosed with Oculoauriculofrontonasal syndrome?

You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Oculoauriculofrontonasal syndrome, look for clinical trials, and connect with others living with it — all in one place.

Open the full Oculoauriculofrontonasal syndrome hub →

Overview

Oculoauriculofrontonasal syndrome is a rare condition. Also known as OAFNS. Tomeko brings together the specialists, research, clinical trials, treatments and community for Oculoauriculofrontonasal syndrome so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.

Identifiers: ORPHA:398156 · OMIM 601452 · ICD-10 Q87.0 · GARD 0004031

Find care for Oculoauriculofrontonasal syndrome

Authoritative references for Oculoauriculofrontonasal syndrome

Common questions

I was just diagnosed with Oculoauriculofrontonasal syndrome — what should I do first?

Start by learning the basics from an authoritative source, find a specialist or center that sees Oculoauriculofrontonasal syndrome, and connect with a patient organization. Tomeko brings these together on one hub.

Where can I find a specialist for Oculoauriculofrontonasal syndrome?

Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Oculoauriculofrontonasal syndrome, filtered to your area.

Are there clinical trials for Oculoauriculofrontonasal syndrome?

Tomeko shows live, recruiting studies for Oculoauriculofrontonasal syndrome from ClinicalTrials.gov on the hub.

Informational only — not medical advice. Always consult a qualified clinician. Provider and reference data from public sources (NIH GARD, Orphanet, OMIM, HPO, MONDO, ClinicalTrials.gov, CMS NPPES). © Tomeko · tomekohealth.com