You are not alone. Here is where to start: learn the basics, find a specialist or center that sees North Carolina macular dystrophy, look for clinical trials, and connect with others living with it — all in one place.
Open the full North Carolina macular dystrophy hub →North Carolina macular dystrophy is a rare condition. Also known as CAPE dystrophy, CAPED, Central areolar pigment epithelial dystrophy, Central retinal pigment epithelial dystrophy, MCDR1, NCMD, North Carolina macular dystrophy, retinal 1, Progressive foveal dystrophy. Tomeko brings together the specialists, research, clinical trials, treatments and community for North Carolina macular dystrophy so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:75327 · OMIM 136550, 608850 · ICD-10 H35.5 · GARD 0009179
Start by learning the basics from an authoritative source, find a specialist or center that sees North Carolina macular dystrophy, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat North Carolina macular dystrophy, filtered to your area.
Tomeko shows live, recruiting studies for North Carolina macular dystrophy from ClinicalTrials.gov on the hub.