You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Neuronopathy, distal hereditary motor, type 5, look for clinical trials, and connect with others living with it — all in one place.
Open the full Neuronopathy, distal hereditary motor, type 5 hub →Neuronopathy, distal hereditary motor, type 5 is a rare condition. Also known as Distal HMN V, Distal hereditary motor neuropathy type V, Distal spinal muscular atrophy type 5, dHMN5. Tomeko brings together the specialists, research, clinical trials, treatments and community for Neuronopathy, distal hereditary motor, type 5 so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:139536 · OMIM 600794, 614751, 619112 · ICD-10 G12.2 · GARD 0016955
Start by learning the basics from an authoritative source, find a specialist or center that sees Neuronopathy, distal hereditary motor, type 5, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Neuronopathy, distal hereditary motor, type 5, filtered to your area.
Tomeko shows live, recruiting studies for Neuronopathy, distal hereditary motor, type 5 from ClinicalTrials.gov on the hub.