You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Neuroferritinopathy, look for clinical trials, and connect with others living with it — all in one place.
Open the full Neuroferritinopathy hub →Neuroferritinopathy is a rare condition. Also known as Adult basal ganglia disease, Ferritin-related neurodegeneration, Hereditary ferritinopathy. Tomeko brings together the specialists, research, clinical trials, treatments and community for Neuroferritinopathy so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:157846 · OMIM 606159 · ICD-10 G23.0 · GARD 0010686
Start by learning the basics from an authoritative source, find a specialist or center that sees Neuroferritinopathy, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Neuroferritinopathy, filtered to your area.
Tomeko shows live, recruiting studies for Neuroferritinopathy from ClinicalTrials.gov on the hub.