You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Neurodegeneration with brain iron accumulation 5, look for clinical trials, and connect with others living with it — all in one place.
Open the full Neurodegeneration with brain iron accumulation 5 hub →Neurodegeneration with brain iron accumulation 5 is a rare condition. Also known as BPAN, NBIA5, Neurodegeneration with brain iron accumulation type 5, SENDA, Static encephalopathy of childhood with neurodegeneration in adulthood. Tomeko brings together the specialists, research, clinical trials, treatments and community for Neurodegeneration with brain iron accumulation 5 so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:329284 · OMIM 300894 · ICD-10 G23.0 · GARD 0012570
Start by learning the basics from an authoritative source, find a specialist or center that sees Neurodegeneration with brain iron accumulation 5, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Neurodegeneration with brain iron accumulation 5, filtered to your area.
Tomeko shows live, recruiting studies for Neurodegeneration with brain iron accumulation 5 from ClinicalTrials.gov on the hub.