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Neonatal Marfan syndrome

Just diagnosed with Neonatal Marfan syndrome?

You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Neonatal Marfan syndrome, look for clinical trials, and connect with others living with it — all in one place.

Open the full Neonatal Marfan syndrome hub →

Overview

Neonatal Marfan syndrome is a rare condition. Also known as Neonatal MFS. Tomeko brings together the specialists, research, clinical trials, treatments and community for Neonatal Marfan syndrome so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.

Identifiers: ORPHA:284979 · ICD-10 Q87.4 · GARD 0021128

Find care for Neonatal Marfan syndrome

Authoritative references for Neonatal Marfan syndrome

Common questions

I was just diagnosed with Neonatal Marfan syndrome — what should I do first?

Start by learning the basics from an authoritative source, find a specialist or center that sees Neonatal Marfan syndrome, and connect with a patient organization. Tomeko brings these together on one hub.

Where can I find a specialist for Neonatal Marfan syndrome?

Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Neonatal Marfan syndrome, filtered to your area.

Are there clinical trials for Neonatal Marfan syndrome?

Tomeko shows live, recruiting studies for Neonatal Marfan syndrome from ClinicalTrials.gov on the hub.

Informational only — not medical advice. Always consult a qualified clinician. Provider and reference data from public sources (NIH GARD, Orphanet, OMIM, HPO, MONDO, ClinicalTrials.gov, CMS NPPES). © Tomeko · tomekohealth.com