You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Nemaline myopathy, look for clinical trials, and connect with others living with it — all in one place.
Open the full Nemaline myopathy hub →Nemaline myopathy is a rare condition. Also known as NEM, NM, Nemaline rod myopathy. Tomeko brings together the specialists, research, clinical trials, treatments and community for Nemaline myopathy so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:607 · GARD 0012033
Start by learning the basics from an authoritative source, find a specialist or center that sees Nemaline myopathy, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Nemaline myopathy, filtered to your area.
Tomeko shows live, recruiting studies for Nemaline myopathy from ClinicalTrials.gov on the hub.