You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Naxos disease, look for clinical trials, and connect with others living with it — all in one place.
Open the full Naxos disease hub →Naxos disease is a rare condition. Also known as KWWH type I, Keratoderma with woolly hair type I, Keratosis palmoplantaris with arrythmogenic cardiomyopathy, Naxos syndrome, Palmoplantar hyperkeratosis with arrythmogenic cardiomyopathy, Palmoplantar keratoderma with arrythmogenic cardiomyopathy. Tomeko brings together the specialists, research, clinical trials, treatments and community for Naxos disease so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:34217 · OMIM 601214 · ICD-10 Q87.8 · GARD 0009795
Start by learning the basics from an authoritative source, find a specialist or center that sees Naxos disease, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Naxos disease, filtered to your area.
Tomeko shows live, recruiting studies for Naxos disease from ClinicalTrials.gov on the hub.