You are not alone. Here is where to start: learn the basics, find a specialist or center that sees NARP syndrome, look for clinical trials, and connect with others living with it — all in one place.
Open the full NARP syndrome hub →NARP syndrome is a rare condition. Also known as Neurogenic muscle weakness-ataxia-retinitis pigmentosa syndrome, Neuropathy-ataxia-retinitis pigmentosa syndrome. Tomeko brings together the specialists, research, clinical trials, treatments and community for NARP syndrome so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:644 · OMIM 551500 · ICD-10 E88.8 · GARD 0000262
Start by learning the basics from an authoritative source, find a specialist or center that sees NARP syndrome, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat NARP syndrome, filtered to your area.
Tomeko shows live, recruiting studies for NARP syndrome from ClinicalTrials.gov on the hub.