You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Nail-patella syndrome, look for clinical trials, and connect with others living with it — all in one place.
Open the full Nail-patella syndrome hub →Nail-patella syndrome is a rare condition. Also known as Onychoosteodysplasia, Turner-Kieser syndrome. Tomeko brings together the specialists, research, clinical trials, treatments and community for Nail-patella syndrome so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:2614 · OMIM 161200 · ICD-10 Q87.2 · GARD 0007160
Start by learning the basics from an authoritative source, find a specialist or center that sees Nail-patella syndrome, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Nail-patella syndrome, filtered to your area.
Tomeko shows live, recruiting studies for Nail-patella syndrome from ClinicalTrials.gov on the hub.