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Myosin storage myopathy

Just diagnosed with Myosin storage myopathy?

You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Myosin storage myopathy, look for clinical trials, and connect with others living with it — all in one place.

Open the full Myosin storage myopathy hub →

Overview

Myosin storage myopathy is a rare condition. Also known as MSMA. Tomeko brings together the specialists, research, clinical trials, treatments and community for Myosin storage myopathy so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.

Identifiers: ORPHA:636965 · OMIM 608358 · ICD-10 G72.8 · GARD 0015429

Find care for Myosin storage myopathy

Authoritative references for Myosin storage myopathy

Common questions

I was just diagnosed with Myosin storage myopathy — what should I do first?

Start by learning the basics from an authoritative source, find a specialist or center that sees Myosin storage myopathy, and connect with a patient organization. Tomeko brings these together on one hub.

Where can I find a specialist for Myosin storage myopathy?

Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Myosin storage myopathy, filtered to your area.

Are there clinical trials for Myosin storage myopathy?

Tomeko shows live, recruiting studies for Myosin storage myopathy from ClinicalTrials.gov on the hub.

Informational only — not medical advice. Always consult a qualified clinician. Provider and reference data from public sources (NIH GARD, Orphanet, OMIM, HPO, MONDO, ClinicalTrials.gov, CMS NPPES). © Tomeko · tomekohealth.com