You are not alone. Here is where to start: learn the basics, find a specialist or center that sees MYH7-related skeletal myopathy, look for clinical trials, and connect with others living with it — all in one place.
Open the full MYH7-related skeletal myopathy hub →MYH7-related skeletal myopathy is a rare condition. Also known as Distal myopathy type 1, MPD1. Tomeko brings together the specialists, research, clinical trials, treatments and community for MYH7-related skeletal myopathy so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:59135 · OMIM 160500 · ICD-10 G71.0 · GARD 0010769
Start by learning the basics from an authoritative source, find a specialist or center that sees MYH7-related skeletal myopathy, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat MYH7-related skeletal myopathy, filtered to your area.
Tomeko shows live, recruiting studies for MYH7-related skeletal myopathy from ClinicalTrials.gov on the hub.