You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Mutilating keratoderma, look for clinical trials, and connect with others living with it — all in one place.
Open the full Mutilating keratoderma hub →Mutilating keratoderma is a rare condition. Also known as Mutilating keratoderma of Vohwinkel, Mutilating keratoderma plus deafness, Mutilating keratoderma plus hearing loss, PPK mutilans and deafness, PPK mutilans and hearing loss, Vohwinkel syndrome. Tomeko brings together the specialists, research, clinical trials, treatments and community for Mutilating keratoderma so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:494 · OMIM 124500 · ICD-10 Q82.8 · GARD 0003092
Start by learning the basics from an authoritative source, find a specialist or center that sees Mutilating keratoderma, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Mutilating keratoderma, filtered to your area.
Tomeko shows live, recruiting studies for Mutilating keratoderma from ClinicalTrials.gov on the hub.