You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Multiple symmetric lipomatosis, look for clinical trials, and connect with others living with it — all in one place.
Open the full Multiple symmetric lipomatosis hub →Multiple symmetric lipomatosis is a rare condition. Also known as Cephalothoracic lipodystrophy, Familial benign cervical lipomatosis, Launois-Bensaude lipomatosis, Madelung disease. Tomeko brings together the specialists, research, clinical trials, treatments and community for Multiple symmetric lipomatosis so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:2398 · OMIM 151800 · ICD-10 E88.8 · GARD 0006957
Start by learning the basics from an authoritative source, find a specialist or center that sees Multiple symmetric lipomatosis, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Multiple symmetric lipomatosis, filtered to your area.
Tomeko shows live, recruiting studies for Multiple symmetric lipomatosis from ClinicalTrials.gov on the hub.