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Multiple congenital exostosis

Just diagnosed with Multiple congenital exostosis?

You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Multiple congenital exostosis, look for clinical trials, and connect with others living with it — all in one place.

Open the full Multiple congenital exostosis hub →

Overview

Multiple congenital exostosis is a rare condition. Also known as Bessel-Hagen disease, Multiple cartilaginous exostoses. Tomeko brings together the specialists, research, clinical trials, treatments and community for Multiple congenital exostosis so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.

Identifiers: ORPHA:321 · OMIM 133700, 133701, 600209 · ICD-10 Q78.6 · GARD 0007035

Find care for Multiple congenital exostosis

Authoritative references for Multiple congenital exostosis

Common questions

I was just diagnosed with Multiple congenital exostosis — what should I do first?

Start by learning the basics from an authoritative source, find a specialist or center that sees Multiple congenital exostosis, and connect with a patient organization. Tomeko brings these together on one hub.

Where can I find a specialist for Multiple congenital exostosis?

Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Multiple congenital exostosis, filtered to your area.

Are there clinical trials for Multiple congenital exostosis?

Tomeko shows live, recruiting studies for Multiple congenital exostosis from ClinicalTrials.gov on the hub.

Informational only — not medical advice. Always consult a qualified clinician. Provider and reference data from public sources (NIH GARD, Orphanet, OMIM, HPO, MONDO, ClinicalTrials.gov, CMS NPPES). © Tomeko · tomekohealth.com