You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Monomelic amyotrophy, look for clinical trials, and connect with others living with it — all in one place.
Open the full Monomelic amyotrophy hub →Monomelic amyotrophy is a rare condition. Also known as Benign focal amyotrophy, Hirayama disease, JMADUE, Juvenile muscular atrophy of distal upper extremity, Juvenile muscular atrophy of the distal upper limb. Tomeko brings together the specialists, research, clinical trials, treatments and community for Monomelic amyotrophy so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:65684 · OMIM 602440 · ICD-10 G12.8 · GARD 0009697
Start by learning the basics from an authoritative source, find a specialist or center that sees Monomelic amyotrophy, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Monomelic amyotrophy, filtered to your area.
Tomeko shows live, recruiting studies for Monomelic amyotrophy from ClinicalTrials.gov on the hub.