You are not alone. Here is where to start: learn the basics, find a specialist or center that sees MOMO syndrome, look for clinical trials, and connect with others living with it — all in one place.
Open the full MOMO syndrome hub →MOMO syndrome is a rare condition. Also known as Macrocephaly-obesity-intellectual disability-ocular abnormalities syndrome, Macrosomia-obesity-macrocephaly-ocular abnormalities syndrome. Tomeko brings together the specialists, research, clinical trials, treatments and community for MOMO syndrome so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:2563 · OMIM 157980 · ICD-10 Q87.3 · GARD 0000178
Start by learning the basics from an authoritative source, find a specialist or center that sees MOMO syndrome, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat MOMO syndrome, filtered to your area.
Tomeko shows live, recruiting studies for MOMO syndrome from ClinicalTrials.gov on the hub.