You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Miyoshi myopathy, look for clinical trials, and connect with others living with it — all in one place.
Open the full Miyoshi myopathy hub →Miyoshi myopathy is a rare condition. Tomeko brings together the specialists, research, clinical trials, treatments and community for Miyoshi myopathy so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:45448 · OMIM 254130, 613318 · ICD-10 G71.0 · GARD 0009676
Start by learning the basics from an authoritative source, find a specialist or center that sees Miyoshi myopathy, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Miyoshi myopathy, filtered to your area.
Tomeko shows live, recruiting studies for Miyoshi myopathy from ClinicalTrials.gov on the hub.