You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Metageria, look for clinical trials, and connect with others living with it — all in one place.
Open the full Metageria hub →Metageria is a rare condition. Also known as Acrogeria, Gottron type, Acrometageria, Gottron syndrome. Tomeko brings together the specialists, research, clinical trials, treatments and community for Metageria so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:2500 · OMIM 201200 · ICD-10 E34.8 · GARD 0006543
Start by learning the basics from an authoritative source, find a specialist or center that sees Metageria, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Metageria, filtered to your area.
Tomeko shows live, recruiting studies for Metageria from ClinicalTrials.gov on the hub.