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MERRF syndrome

Just diagnosed with MERRF syndrome?

You are not alone. Here is where to start: learn the basics, find a specialist or center that sees MERRF syndrome, look for clinical trials, and connect with others living with it — all in one place.

Open the full MERRF syndrome hub →

Overview

MERRF syndrome is a rare condition. Also known as Fukuhara syndrome, Myoclonus epilepsy associated with ragged-red fibres. Tomeko brings together the specialists, research, clinical trials, treatments and community for MERRF syndrome so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.

Identifiers: ORPHA:551 · OMIM 545000 · ICD-10 G71.3 · GARD 0007144

Find care for MERRF syndrome

Authoritative references for MERRF syndrome

Common questions

I was just diagnosed with MERRF syndrome — what should I do first?

Start by learning the basics from an authoritative source, find a specialist or center that sees MERRF syndrome, and connect with a patient organization. Tomeko brings these together on one hub.

Where can I find a specialist for MERRF syndrome?

Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat MERRF syndrome, filtered to your area.

Are there clinical trials for MERRF syndrome?

Tomeko shows live, recruiting studies for MERRF syndrome from ClinicalTrials.gov on the hub.

Informational only — not medical advice. Always consult a qualified clinician. Provider and reference data from public sources (NIH GARD, Orphanet, OMIM, HPO, MONDO, ClinicalTrials.gov, CMS NPPES). © Tomeko · tomekohealth.com