You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Medullary sponge kidney, look for clinical trials, and connect with others living with it — all in one place.
Open the full Medullary sponge kidney hub →Medullary sponge kidney is a rare condition. Also known as Cacchi-Ricci disease, MSK, Precalicial canalicular ectasia. Tomeko brings together the specialists, research, clinical trials, treatments and community for Medullary sponge kidney so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:1309 · ICD-10 Q61.5 · GARD 0000232
Start by learning the basics from an authoritative source, find a specialist or center that sees Medullary sponge kidney, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Medullary sponge kidney, filtered to your area.
Tomeko shows live, recruiting studies for Medullary sponge kidney from ClinicalTrials.gov on the hub.