You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Mayer Rokitansky Kuster Hauser syndrome type 1, look for clinical trials, and connect with others living with it — all in one place.
Open the full Mayer Rokitansky Kuster Hauser syndrome type 1 hub →Mayer Rokitansky Kuster Hauser syndrome type 1 is a rare condition. Also known as Congenital absence of uterus and vagina, MRKH syndrome type 1, Rokitansky sequence. Tomeko brings together the specialists, research, clinical trials, treatments and community for Mayer Rokitansky Kuster Hauser syndrome type 1 so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:247775 · OMIM 277000 · ICD-10 Q51.8 · GARD 0004737
Start by learning the basics from an authoritative source, find a specialist or center that sees Mayer Rokitansky Kuster Hauser syndrome type 1, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Mayer Rokitansky Kuster Hauser syndrome type 1, filtered to your area.
Tomeko shows live, recruiting studies for Mayer Rokitansky Kuster Hauser syndrome type 1 from ClinicalTrials.gov on the hub.