You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Maternally-inherited Leigh syndrome, look for clinical trials, and connect with others living with it — all in one place.
Open the full Maternally-inherited Leigh syndrome hub →Maternally-inherited Leigh syndrome is a rare condition. Also known as MILS, Maternally-inherited Leigh disease, Maternally-inherited infantile subacute necrotizing encephalopathy, mtDNA-associated Leigh syndrome. Tomeko brings together the specialists, research, clinical trials, treatments and community for Maternally-inherited Leigh syndrome so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:255210 · OMIM 500017 · ICD-10 G31.8 · GARD 0003671
Start by learning the basics from an authoritative source, find a specialist or center that sees Maternally-inherited Leigh syndrome, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Maternally-inherited Leigh syndrome, filtered to your area.
Tomeko shows live, recruiting studies for Maternally-inherited Leigh syndrome from ClinicalTrials.gov on the hub.