You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Marie Unna syndrome, look for clinical trials, and connect with others living with it — all in one place.
Open the full Marie Unna syndrome hub →Marie Unna syndrome is a rare condition. Also known as Hypotrichosis, Marie Unna type, MUHH, Marie Unna congenital hypotrichosis. Tomeko brings together the specialists, research, clinical trials, treatments and community for Marie Unna syndrome so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:444 · OMIM 146550, 612841 · ICD-10 Q84.0 · GARD 0003390
Start by learning the basics from an authoritative source, find a specialist or center that sees Marie Unna syndrome, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Marie Unna syndrome, filtered to your area.
Tomeko shows live, recruiting studies for Marie Unna syndrome from ClinicalTrials.gov on the hub.